Clinical Center News
Fall 2019

Clinical trials for Fanconi anemia, CLL or SLL, and heathy volunteers recruiting at the NIH Clinical Center

For more information on trials listed below, or to learn about other available opportunities to participate in research studies, call the NIH Clinical Center Office of Patient Recruitment 1- 866-444-2214, TTY: 1-866-411-1010. Or email prpl@cc.nih.gov. Se habla español.

NHLBI researchers need volunteers with CLL or SLL for a new investigational treatment study. Researchers are adding pembrolizumab (an immunotherapy agent) to standard treatment. If you have received treatment for CLL and progressed OR have high-risk genetic changes, such as deletion 17p, TP53 mutation, NOTCH1 mutation, or complex cytogenics, you may be interested in participating. Refer to Study # 17-H-0118.

scientific image of cells

NHLBI researchers need volunteers at least 4 years old with Fanconi anemia to participate in a study looking to help investigate a treatment to improve blood counts. Compensation for travel is provided. Study-related tests are provided at no cost and results are shared with you and your doctor. Refer to Study # 17-H-0121.

nurse kneeling beside a pediatric patient in a wheelchair

NINDS researchers seek healthy volunteers for an outpatient research study. The purpose of this study is to understand more about how the brain controls motor function. Volunteers may receive brain, skin, and nerve stimulation, and may perform tests of hand movement, behavior, and learning (some tests may be done during an MRI scan of the brain). Volunteers may be scheduled for between 1-20 sessions. Sessions will be of various durations, lasting up to 8 hours each. There is no cost for research related procedures or participation. Compensation is provided. Refer to Study # 07-N-0122.

two women performing a brain study

- Submitted by the NIH Clinical Center Office of Patient Recruitment

Stories
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Attendees of the Open Notes session gathered together
Pediatric patient ten-year-old JoJo with Dr. Cynthia Tifft
Branden Bolivar proposes to Marissa Amuso, a patient, May 9 at the NIH Clinical Center
Tom Kaminski with Dr. Sherman Souther
Kayden Reinke, at the age of 2, holding Lammie
Project SEARCH graduates and team
Dr. Marijo Bilusic
Singer-songwriter and pianist Chris Urquiaga
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Dr. Eric Betzig at the podium
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Trina Davis
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Dr. Saul Rosen
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Michael Bard, a volunteer medical musician, holds his guitar in a patient room
Nancy Holmfeld
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Retired Navy Capt. Pius A. Aiyelawo speaking at the NIH Veterans Day Celebration Nov. 7
Pediatric patients are given candy by departments at the Clinical Center
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